Wednesday, July 15, 2009

Thank you

To every one that is reading this blog, Taylor, Ken, Evan, Blake and I would like to say Thank You. Knowing friends and family are praying and thinking of us helps Taylor and his family get through each day. We know in God's time, Taylor will be relieved from this pain.

This morning, I'm reminded of a time after Taylor accident in 2001, that I was upset and told Taylor, I didn't know why God let the accident happen to you, in return Taylor said;

"God let this happen to me, not my brothers, because God knows with him I can handle it"

I know with God, friends, and family's thoughts and prays, Taylor will get through this too.

Thank you
Rita Bryan







Tuesday, July 14, 2009

Neurologist Visit

Thursday Taylor. Ken, and I went to see the Neurologist, Dr. Ty Brown. Our short visit consisted of a Neurological exam (that was normal) and a switch of Taylor's medication. Taylor is now on a low dose of Toiramate; another anti-seizure medication which seems funny to me because the Gabapentin is also an anti-seizure medication that Taylor already takes for the hypersensitive visceral pain. Dr. Brown said you could take both at the same time.

At this visit I tried to address the vitamins deficiency that Taylor was tested for in his teen years. Dr. Brown really did not want to do any tests, instead he said if you want to take vitamins that would be fine. I think the most frustrating thing with doctors today, is every doctor is a specialist and do not treat the whole body, but just their specific part. I really believe that all these symptoms started at the same time and some how are connected. I wish there was one doctor that would treat and connect all the symptoms, so that we don't have to go to so many different doctors that don't communicate. When Taylor was being treated at Children’s Hospital when he was a teen, we saw one doctor that looked every aspect of his life, from symptoms, to eating habits, to pain.

Pain is Taylor’s biggest battle, he is in pain 24/7 and after 8 months and five doctors later the Gastro doctors are going to send Taylor to a pain management specialist, but like all specialist there is a six week wait, his appointment is not until August 27. But I am just thankful that a doctor is going to address the pain. Taylor's pain level stays around 7 out of 10.

Taylor is trying to stay positive and wants every one around him to be positive too! Please feel free to send your positive thoughts and well wishes his way.

Thank you for your prays,
Rita Bryan


(pain level today 7 out of 10)