“In opening our hearts, we hope this might promote greater awareness of this condition. Perhaps it will encourage a clearer understanding of the individuals and families who are affected by it”.
~Ronald Reagan
Today July 29, Taylor, Ken and I went to the appointment with the pain management doctor Dr. John Kelly. The 2 ½ hour appointment was very Encouraging. Dr Kelly took the time to listen to all of Taylor’s history. Finally, we met with a doctor that feels that all the symptoms are related. One of the first symptoms he wanted to address is the lack of sleep. Dr. Kelly added that 80% of healing happens when a person is asleep and since Taylor only gets little to no sleep each night, he felt that it was important to address this first. Dr. Kelly agreed with the diagnosis of hypersensitivity pain disorder, and believes that Taylor, because of this disorder, is very sensitive to medicating and side of effects of the medications. So, like the Gabapentin, all the medications will be started at a very low dose and be increased over time.
Taylor’s condition is rare and it is so amazing to watch the look on a doctor’s face when they examine Taylor and see his stomach spasm the way it does. It looks like a wave that ripples over the upper part of his stomach. Taylor says it feels like a Charlie horse, but the pain does not go away. Dr. Kelly wants Taylor to take a video of the spasms and send it to him because Taylor’s condition is so rare.
In the visit with Dr. Kelly, he said, he wanted to do one more MRI on Taylor, this time it will be on his back to see if there is something wrong with the nerves in Taylor’s spinal cord that are connected to Taylor’s stomach. He wants to rule out any pinched nerves or inflammation or anything else.
Dr. Kelly added two new medications to Taylor’s daily routine he will still take the Gabapentin (for nerve spasms) and, Promethazine (for nausea and vomiting). Taylor will add a dose of Imipramine (this will help balance the serotonin levels of the brain and calm Taylor’s nervous system), and the other is Diazepam (to help relax the muscles, and to help Taylor sleep).
We came away from the visit encouraged. Dr. Kelly addressed every symptom, had a plan, and explained medically what was going on with Taylor condition. We look forward to Taylor starting his new medications and getting on the road to recovery.
Please keep Taylor in your thoughts and prays, we pray that this new medication will work quickly.
Rita Bryan
(Pain level 8 at of 10)
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That's great news! Praying that the new medications will help. So glad that you were able to get some good advice and understanding. Thanks for keeping us updated.
ReplyDeleteThat sound great! At least you have found someone that has a plan and an idea of what is wrong. Great help. We will keep praying.
ReplyDeleteBuck, Good to hear about the appointment with the new Doctor. Hope Taylor starts feeling less pain very soon. As always we will continue to pray for all of you. Tommy
ReplyDeleteBuck, you may get two comments from me I not sure I did the first one right. It is good to hear the appointment with the new doctor went well. Hope Taylor is in less pain soon. I know as a parent the feeling of seeing your child in great pain, been there with Matthew.
ReplyDeleteSo please know that Joann and I are keeping all of you in our prayers. God bless
T~
ReplyDeleteOur family continues to pray for you! :-) ~ Please believe.... brighter days are to come. I’m glad to hear about your new pain management doctor. Please have faith in your doctor; and comfort that so many are thinking of you and praying for your recovery.
God bless~
K,A,B,E
"Believe you can and you're half way there."
~ Theodore Roosevelt